Useful links

  • www.ipopi.org 
    International Patient Organisation for Primary Immunodeficiencies. Wide range of information for patients.
  • www.ukpin.org.uk 
    Website for the UK Primary Immunodeficiency Network, which is for specialist doctors. within this website is the archive of the Primary Immunodeficiency Association (PIA) http://www.pia.org.uk. It contains useful information on various aspects of immune deficiency and explains the PIA's closure.
  • www.piduk.org
    A national charity supporting PID patients. Set up in 2013.
  • www.ukpips.org.uk
    a national charity supporting PID patients. Set up in 2012.
  • www.primaryimmune.org 
    Website of a USA nationaI patient support group. Contains useful information on all aspects of immune deficiency.
  • www.info4pi.org 
    The Jeffrey Modell Foundation website. It promotes worldwide awareness of immune deficiency.
  • (link to follow)
    the UCL Centre for PID website that describes the structure, staff and research achievements of the combined adult (Royal Free) and children’s (Great Ormond Street) PID teams. More suitable for medical staff and needs updating.

Specific disorder support groups

Personal accounts by people with immune deficiencies